Kyle’s Beating Heart- Row The Boat

Kyle had heart surgery 4 days after birth for aortic arch hypoplasia. Shortly after, he developed a complication of pulmonary hypertension that we are hopeful will subside in the upcoming months. In just a few short months, Kyle has shown us more strength and perserverence than any of us has ever seen in a lifetime. We are determined to continue to help Kyle in his battle, and will be there every step of the way, just keep rowing that boat kid with each challenge you are faced with in this life, we are right here with you, rowing alongside this journey.
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At our 21 week scan, we found out that our son had a severely underdeveloped heart. His left side of his heart was significantly behind in growth compared to his right side. We prepared for the worst. When we went to CHOP for a echocardiogram in utero, Kyle was diagnosed with aortic arch hypoplasia, which was causing his left side of his heart to not grow at the same rate as his right side. We we’re monitored by the Fetal Heart Program and delivered Kyle at CHOP Special Delivery Unit on May 10, 2018.

Kyle  had heart surgery 4 days after birth for aortic arch hypoplasia. This was supposed to allow for his left side to grow into its right sides size and functionality. Soon after his surgery,  he developed a complication of pulmonary hypertension as his right side of his heart was working way too hard for way too long. Kyle is currently being treated for this and the pulmonary team at CHOP are hopeful this will subside in the upcoming months of Kyle’s life as he becomes stronger.  Kyle spent 36 days in CHOP cardiac intensive care unit in Philadelphia, and we are thankful to the entire team every day that we have with Kyle thanks to them.

In just a few short months, Kyle has shown us more strength and perserverence

than any  of us has ever seen in a lifetime. We are determined to continue to help Kyle in his battle no matter what comes, and will be there every step of the way, just keep rowing that boat kid with each challenge you are faced with in this life, we are right here with you, rowing alongside this journey.