Every time I’m asked to write about Jake’s Story and his fight with Congenital Heart Disease I find myself struggling. How can I possibly put into words what he went through. How can I bring myself back to all those memories and raging emotions of fear, loss, and love.
Well this year I’m not going to do that. What I am going to share with you is a little insight into Jake and who he his.
Like most 7 year olds, Jake is very active. He loves basketball, karate, and gymnastics. He tells me he is training to be the next American Ninja Warrior.
The boy can work up an appetite and eats 24/7. His favorite foods are cheeseburgers and watermelon, but he’ll try anything once.
Jake has an adventurous side and loves amusement parks and thrill rides. He can tell you about the tallest roller coasters in the world, where they are located, and how fast they are. When he grows up he wants to be an engineer and design a roller coaster of his own.
Why am I telling you all this? Because it easily almost never was, but thanks to the dedicated doctors and nurses at CHOP (Children’s Hospital of Philadelphia) and donors and friends like you, my fears and uncertainty 7 years ago have become daily gifts and beautiful moments. I get to know my son Jake. I get to hug him, and hear his voice, and listen to his thoughts, and that is something I will never take for granted.
And now I get to pay it forward.