Wyatt is an 8.5 month old who had surgery March 2017. He was admitted to the hospital in January for RSV and heart failure. He had a large pda that acted like an ap window, pfo and coarctation of aorta. He has chronic lung diseases from the rsv and large pda. He will...
MAX HR. When we cycle, it’s MAX RPM. When we play, it’s Monkeys from Max. But when we run, it’s MAX HR. We’re getting to our MAX Heart Rate to raise funds in honor of Maximilian, our son with Transposition of the Great Arteries who opened our...
Every time I’m asked to write about Jake’s Story and his fight with Congenital Heart Disease I find myself struggling. How can I possibly put into words what he went through. How can I bring myself back to all those memories and raging emotions of fear,...
For my seventh marathon, I wanted to do something special. For that reason, I’ll be running the Philadelphia Marathon in November in order to raise money for Big Hearts to Little Hearts.I promise to give my whole heart to this race! By doing so, I hope I can...
Six and half years ago, our son, Maximus, was born, and the happiest and scariest days of our lives began. The sight of our first born child was overwhelming… our beautiful baby boy was here! But as our hearts filled with indescribable love, we also knew that...
